- Montreal Accord Paper 9: Anonymization and Ethics Considerations for Capturing and Sharing Patient-Reported Outcomes
- Montreal Accord Paper 8: Patient Reported Outcomes (PRO) in Electronic Health Records Can Inform Clinical and Policy Decisions
- Montreal Accord Paper 6: Creating National Initiatives to Support Patient Reported Outcomes (PRO) Development and Use
- Montreal Accord Paper 5: Patient-Reported Outcomes Can Be Linked to Epidemiologic Measures to Monitor Populations and Inform Public Health Decisions
- Montreal Accord Paper 4: Patient-Reported Outcomes Can Inform Clinical Decision Making in Chronic Care
- Montreal Accord Paper 3: Patient Reported Outcomes (PRO) Can Facilitate Shared Decision-Making and Guide Self-Management
- Montreal Accord Paper 2: Terminology Proposed to Measure What Matters in Health
- Montreal Accord Paper 1: Pragmatic Trials and Real-World Evidence
Patient Reported Outcomes (PRO) in Electronic Health Records
Paper 8: Informing Clinical and Policy Decisions
S. Ahmed, PhD, P. Ware, MPH, W. Gardner, PhD, J. Witter, MD, PhD, C.O. Bingham III, MD, D. Khairy, S.J. Bartlett, PhD
Given that the goal of healthcare systems is to improve and maintain the health of the populations they serve, the indicators of performance must include outcomes that are meaningful to patients. The growth of health technologies provides an unprecedented opportunity to integrate the patient voice into clinical care by linking electronic health records (EHR) to patient-reported outcome (PRO) data collection. However, PRO data must be relevant, meaningful, and actionable for those who will have to invest the time and effort to collect it.
Objective
In this paper, we highlight opportunities to integrate PRO data collection into EHRs. We consider how stakeholder perspectives should influence the selection of PROs and ways to enhance engagement in and commitment to PRO implementation. We propose a research and policy agenda to address unanswered questions and facilitate the widespread adoption of PRO data collection into EHRs.
Discussion
Building a learning healthcare system that gathers PRO data in ways that can inform individual patient care, quality improvement, and comparative effectiveness research has the potential to accelerate the application of new evidence and knowledge to patient care.
DOI: http://dx.doi.org/10.1016/j.jclinepi.2017.04.011
J Clin Epidemiol. 2017 Apr 19. pii: S0895-4356(17)30407-9. doi: 10.1016/j.jclinepi.2017.04.011.
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